I am 67 years old (2016) and have cerebral microvascular disease, after Alzheimer’s the second leading cause of dementia. This website tells—through my published writing, a film series by VideoWest, and a blog titled “Dementia Field Notes”—how I perceive my “self” as the disease continues to diminish my identity. By publicly sharing who I am and how I feel about it, I hope to help lift the shame and fear still associated with dementia. If someone you love has dementia, I hope that my website might help you better understand the view from inside.
Blog: Dementia Field Notes
When Doug Fabrizio, curator of the VideoWest series about my dementia, interviewed me for the first film, he asked how dementia affected my state of being. “I feel like I am not well-balanced on the earth,” I replied. “I feel I could stumble. It’s like when you go to a Halloween haunted house and they […]
Yesterday afternoon I got a note from videographer Josh Weathers that the latest short film VideoWest is making of me is out. Peter and I watched it right away, and it was not very uplifting. I am still glad VideoWest made it, because it is very important to me to be honest about my dementia and […]
Gerda Saunders’ Feelings About Her Dementia in Relation to Michael Rossato-Bennett’s Music and Memory Documentary “Alive Inside”
This video consists of an excerpt from the panel discussion about Michael Rossato-Bennett’s documentary Alive Inside arranged by the Utah Commission on Aging and hosted by Salt Lake Acting Company in 2015. Gerda Saunders, who has dementia, was one of the panelists. She speaks about her feelings regarding Alive Inside , which tells of Dan Cohen’s work of bringing music to […]
There was a time in my life when I thought it would be great to be famous–what for I hadn’t really thought through. Ironically, the fact that I now sometimes appear in the media results from the fact that I have dementia and can still talk about it. Even though I am far more skeptical […]