I am 67 years old (2016) and have cerebral microvascular disease, after Alzheimer’s the second leading cause of dementia. This website tells—through my published writing, a film series by VideoWest, and a blog titled “Dementia Field Notes”—how I perceive my “self” as the disease continues to diminish my identity. By publicly sharing who I am and how I feel about it, I hope to help lift the shame and fear still associated with dementia. If someone you love has dementia, I hope that my website might help you better understand the view from inside.
Blog: Dementia Field Notes
Yesterday afternoon I got a note from videographer Josh Weathers that the latest short film VideoWest is making of me is out. Peter and I watched it right away, and it was not very uplifting. I am still glad VideoWest made it, because it is very important to me to be honest about my dementia and […]
In Disney’s 2003 blockbuster film Finding Nemo, one of the main characters—a memory-impaired tang fish named Dory—frequently utters the tagline “Just keep swimming.” In a “neuropsychological” film review, Danielle Brinckman refers to this tagline as “aquatic advice for coping with amnesia.” While the film itself, as well as its sequel Finding Dory, does not reveal […]
Kimberly Williams-Paisley’s mother, Linda Williams, has a rare form of dementia called primary progressive aphasia. Williams-Paisley’s memoir, Where the Light Gets In: Losing My Mother Only to Find Her Again, takes the reader on a family’s journey as dementia caregivers and how it affects not just the person with the disease but the entire family. “Williams-Paisley was […]